As a sufferer, you will probably be seeing several medical professionals, your GP, urologist or maybe a specialist nurse. You can help CUTIC with its campaign by following the suggestions on this page.
In addition to these ideas, CUTIC sometimes becomes involved in public campaigns – please watch out for information on this on our FB page and sign up to our newsletter on this website.
- Raising awareness to medical professionals
- Share the GP/medical information sheet with your doctor/nurse specialist
- Inform your GP/doctor about the update to the NHS website on the cystitis and UTI pages which reads as follows:
In some people, antibiotics do not work, or urine tests do not pick up an infection even though you have cystitis symptoms.
This may mean you have a long-term (chronic) bladder infection that is not picked up by current urine tests. Ask the GP for a referral to a specialist for further tests and treatment.
- Share our website with your doctor/nurse – cutic.co.uk
- Share a copy of Professor Malone-Lee’s book Cystitis Unmasked with your treatment team
- Raising awareness to the Media
- If you’d like to share your chronic UTI experiences, you may like to contact your local paper, an appropriate magazine, national newspaper, or radio station. In our experience, media outlets are supportive of CUTIC and are always happy to print stories under a pseudonym or anonymously.
- Every now and then CUTIC looks for people to share their stories. We usually put posts on our public FB page or on the FB groups: Chronic UTI Women’s Support Group/Men & Women’s Chronic UTI Support Group. We also put messages on the Support Group for UTIs in Children where appropriate. Please look out for these if you belong to the groups.
Facebook support groups:
https://www.facebook.com/groups/chronicutiwomenssupportgroup/about/ (support group for women only)
https://www.facebook.com/groups/menandwomenschronicutisupportgroup/about/ (support group for men and women)
https://m.facebook.com/groups/1439446326088527/?ref=group_browse (support group for UTIs in children)
https://m.facebook.com/cuticuk/?tsid=0.7391987001016953&source=result (CUTIC’s public facebook page)
- If you have a Twitter or Instagram account, and are happy to share your experiences, please put messages out there.
- Follow us on Twitter for any latest developments
- Sign up to our Newsletter on our website