Are constant urinary tract infections (UTIs) ruining your life? Have you been diagnosed with interstitial cystitis or painful bladder syndrome and told you must learn to live with it?

CUTIC – the Chronic Urinary Tract Infection Campaign – was started by people just like you. We know first-hand the pain and misery of living with a long-term infection. We’re campaigning for better recognition and treatment for sufferers.

Our information and advice is based on the latest research and has been put together with the help of doctors specialising in chronic UTI.

Chronic UTI – commonly asked questions

What is chronic UTI and how do I know if I have it?

Chronic UTI often starts when a simple infection is left untreated or fails to get better with standard treatments. Read about how and why chronic UTI develops.

I feel like I have a UTI but my tests are negative

Sound familiar? Find out why dipstick tests and urine cultures fail to detect many urinary tract infections.

I’ve been told I have interstitial cystitis (IC) or painful bladder syndrome (PBS)

Evidence suggests many people diagnosed with IC or PBS and other bladder conditions could be suffering from an untreated bacterial infection.

What treatment is there for chronic UTI?

It can take time to find the right combination of treatment or treatments to successfully reduce your symptoms and the infection.

Read more about current treatment options for chronic UTI at the following:

Bladder Health UK (formerly The Cystitis and Overactive Bladder Foundation)
Chronic UTI Australia
Chronic UTI Info
Live UTI Free

Information provided by these websites is available in the public domain relating to chronic infections of the urinary tract. CUTIC assumes no liability for, and makes no guarantee in relation to any information provided on these sites.

Practical advice

How do I speak to my doctor about this?

Current guidelines for GPs don’t even mention chronic UTI. We know it can be difficult to explain all this and describe your symptoms in a short doctor’s appointment. Our Medical Professionals information sheet gives advice on how best to help patients and explains the problems with testing.

Support groups

Are you in treatment for Chronic UTI? Or are you wondering if your IC diagnosis could be wrong as you have a history of UTIs and want a safe space to find out more? Find a supportive environment for you to understand your infections, seek and discuss treatment and be in contact with fellow sufferers across the world.

Whilst the following Facebook groups can’t give medical advice, they provide a safe space for you to talk to others about how you’re doing and help stop you feeling isolated in all that you are going through.

Please note that these groups were not created or are run by CUTIC and opinions expressed in these groups are solely those of each author and are not endorsed by or are representative of CUTIC.

Men and Women’s Chronic UTI Support Group
Chronic UTI Women’s Support Group
Support Group for UTIs in Children
Embedded/Chronic UTI Support Group

For those based in Australia or New Zealand search for the Chronic and Recurrent UTI Chat Group (Australia and New Zealand).

Other global campaign and support groups

Bladder Health UK (formerly The Cystitis and Overactive Bladder Foundation)
Chronic UTI Australia
Live UTI Free

If you would like to speak to someone, Bladder Health UK run an advice line. One day a week you can speak to a continence nurse and urogynaelocogical nurse. Call 0121 702 0820.

Read stories

Having chronic UTI can feel incredibly isolating, but you are not alone. Men, women and children get UTIs. Some CUTIC supporters have shared their stories.