CUTIC – the Chronic Urinary Tract Infection Campaign – works to improve testing and treatment for chronic UTI sufferers. Here’s how you can get involved:

Add your voice to Government consultation on Women’s Health Strategy

The UK Government have launched a consultation on a new Women’s Health Strategy. They want to hear from you about your experiences of the health care system. The consultation will inform recommendations to help create more equal access to treatment.

There is urgent need for change.

  • 1 in 3 women will experience a UTI in their lifetime.
  • But there are no guidelines for recurrent or persistent cystitis.

Our own surveys have shown 88% of you had to return to the GP when your infection didn’t go away or came back within a month.

Sufferers have had their symptoms dismissed by their GP or urologist on the basis of tests that are seriously flawed and miss infections.

We know many of you have been questioned about your emotional and mental well being. Not believed and marginalised. Please share the issues you have faced.

Add your voice to the survey part of the consultation

What’s missing from the survey….

The survey asks which women’s health topics should be covered in the new strategy. There is no box to tick for UTI. We feel this is a huge omission. But there are comment boxes where you can highlight this.

There’s also space where you can share some of your experiences of getting the correct diagnosis and treatment, and what more research and educational information could be developed for persistent UTI.

Anyone over the age of 16 who lives in England can complete the survey that forms part of the consultation.

Help us prime practitioners so they know how to diagnose and treat UTIs successfully

A new book Cystitis Unmasked could make a real difference to the way urinary tract infections are diagnosed and treated.

The book is aimed at clinicians and sets out a practical approach to understand, diagnose and successfully treat chronic or recurrent urinary tract infections.

Help us inform GPs, urology specialists and urology nurses. If you can afford to, please consider buying one for your doctor. The average GP has over 2000 patients, together we can potentially help hundreds of thousands of people.

Order directly from the publisher TFM Publishing

Get a 30% discount add in the code CUTIC30
Add in the address of your doctor and TFM Publishing will include our CUTIC Medical Professionals Factsheet and send the book straight to your clinician.

#PrimeaPractitioner
Tag @CUTICUK or email us to let us know when you’ve sent a book.

Help us prime practitioners so they know how to diagnose and treat UTIs successfully. Together we could change the lives of hundreds of thousands of people.

Educate yourself

If you have a chronic UTI, you may have a reasonable understanding of its mechanisms and how it developed but if not then use our research page and other resources on this website to understand how current urine testing is ineffective and how a chronic infection is different to that of an acute UTI. Do you have friends or family who are microbiologists, scientists or indeed clinicians – talk to them to help you understand bacteria, laboratory processes and how antibiotics target bacteria.

NHS Digital have data about the incidence of UTI treatment in hospitals across England from the mid 1990s onwards. You may also want to look at studies highlighting globally how many work or school days are lost to UTI or the cost of health diagnostics.

Another key area to understand is that of national guidelines for Urinary Tract infections and how, at present, they are unable to support those with Chronic UTI. In England, the guidelines prepared by The National Institute for Clinical Excellence (NICE) and Public Health England (PHE) form the basis for clinical management of UTIs. In Scotland The Scottish Intercollegiate Guidelines Network provide these guidelines.

All this helps to build a picture and your work can help CUTIC develop key campaign materials targeted to different audiences. Let us know what you discover so we can work together.

Whilst research papers can seem daunting, a good grounding in urinary tract infections and the failings of UTI diagnostic processes and guidelines will help you to advocate more confidently to key decision makers, your GP or secondary consultant and build a vital groundswell of patient advocates speaking out about Chronic UTI.

Talk to your GP about chronic UTI

We’ve produced an explainer for GPs which you can print out and take to your appointment. It gives advice on treatment, explains the problems with testing and links to the latest research on chronic UTI.

Keep up to date with the latest news and campaign actions:

Help us raise funds for free when you shop online

Easyfundraising is a brilliant way to raise money for our work. Shop online from over 2,700 retailers and they’ll give a small donation every time you buy something, at no extra cost to you. So far 90 people have helped up raise over £650.

Start easyfundraising for us

Register at www.easyfundraising.org.uk
Choose CUTIC as your cause
Then get shopping!

Get chronic UTI on the agenda

Tweet or email these articles about chronic urinary tract infections, add something about your experience if you’d like to share, to as many of the following organisations as you can.

If you’re not online please write a letter reference these articles and your own experiences if you’d like to share them.

We’re asking for:

  • chronic UTI to be recognised as a medical condition
  • that the National Institute for Clinical Excellence (NICE) provide diagnostic and treatment guidelines to GPs and clinicians for chronic UTI
  • the education of GPs and clinicians so that there is awareness that dipstick and urine culture tests are proven to be unreliable as the primary diagnostic method for cUTI
  • the adoption of clinically-proven treatment regimes – that recognise the difference between a chronic and acute infection – to successfully treat sufferers of chronic UTI.

If you’re on Twitter use the hashtags:
#bettertestingforUTI
#chronicUTI
You can find us on @cuticuk

Contact

@NICEcomms
The body that make the medical guidelines for clinicians
Chief Executive, Sir Andrew Dillon
Email: nice@nice.org.uk

@RCPCHPresident
Royal College of Paediatricians, Professor Russell Viner, President
Email: enquiries@rcpch.ac.uk

Royal College of Physicians, Dr Andrew Goddard, President
@RCPLondon
Email: andrew.goddard@rcplondon.ac.uk

Royal College of General Practictioners, Professor Mayur Lakhani, President
@rcgp
Email: circ@rcgp.org.uk

British Society of Urogynaecology
Email: bsug@rcog.org.uk

@medicalwomenuk
Women’s Medical Federation, Dr Henrietta Bowden-Jones, President
Email: admin@medicalwomensfederation.org.uk

Victoria Derbyshire Show BBC
@VictoriaLIVE
Email: victoria@bbc.co.uk

The Lorraine Show ITV
@lorraine
Email: lorraine@itv.com

The British Association of Urological Surgeons
@BAUSurology
Tim O’Brien, President
Email: president@baus.org.uk

Public Health England
@PHE_uk
Email: phe-pressoffice@phe.gov.uk
Director for Health Protection and Medical Director, Professor Paul Cosford CB
Leading PHE’s work on quality and clinical governance
Director, National Infection Service, Professor Derrick Crook
The Director of the National Infection Service leads and directs the specialist reference and diagnostic microbiology health protection services provided by Public Health England, and advises PHE’s executive on strategy and policy for microbiology services.

@APPG_WH
The All-Party Parliamentary Group on Women’s Health
Email: APPGWH@mailpbconsulting.com